Kylie at 3 months

Kylie at 3 months

Saturday, June 19, 2010

Our Little Fatty

Kylie had a great doctor's visit yesterday.  She gained another 2 ounces and is now 6 pounds 8 ounces.  I really hope that we are on the way to some healthy weight gain.  We are so pleased.

Kylie also gave us a scare yesterday.  While practicing some bottle feeding, Kylie asphyxiated on some milk.  She had a really bad time of it, having a difficult time breathing, her coloring being very pale, and just giving us a very bad scare.  Hospice, as usual, was right on it.  They guided the grandparents (as John and I were at work) in what to do and our hospice nurse was hot on the way over to our house.  John and I have never had a longer drive home from work. 

After a very dicey afternoon, Kylie recovered (she is so strong) and is now back to herself.  We were scared for a while of her having fluid in her lungs, but after a day, she did not have any fluid left over. 

Sunday, June 13, 2010

Praise Be To God

Kylie did a great job last week.  After a lot of hard work, Kylie has gained 4 ounces.  The doctor asked me when we showed up what I was shooting for, and I told him I wasn't going to be greedy and just wanted her to maintain.  What a sweet surprise when the doctor told us she was 6 pounds 6 ounces.  Everyone, including the doctor, were all smiles.

Thank you all for the prayers and well wishes, we so appreciate them.  I am praying that Kylie's gain continues.  She is such a bright and sweet girl.  Kylie loves to smile and is quite the drama queen (she loves to sleep with her arm draped over her forehead).  We are still working on getting her to lift her head on her own.  She can do this a little bit, but still has a ways to go.  I keep telling her that she will have a new kind of independence if she learns this new trick. 

Thanks again and we will keep you posted.

Sunday, June 6, 2010

Kyle needs your prayer.  We had our weigh-in last week and had the bad news of Kylie losing weight again.  Kylie is now 6 lbs 2 oz, which is down from 6 lbs 7 oz.  This of course has us concerned because she is already a very little girl and does not have a lot to lose as it is. 

We have started feeding Kylie formula (which we started a few weeks ago) and have increased the amount of formula we are giving her.  We still feed Kylie breast milk, which she is doing very well with.  Kylie also loves her veges (especially her green beans and carrots).  Kylie has also progressively gotten better at sucking on the bottle.  Kylie still cannot drink enough to sustain her, but this improvement is encouraging.

We are hoping that increasing Kylie's food intake is what she needs.  We hope that Kylie is just a little girl who is growing and we have been too conservative in the amounts we have been feeding her.  The scary possibility is that her body is shutting down and her body is not taking in nutrients from the food that we are feeding her. 

We are so proud of our little girl!!  She is so strong and is a true
fighter.  Thanks for all the love and prayers.